What goes up must come down....with highs there have to be lows. Yes, I was singing my daughter's praises yesterday. Today was my off day. Hailey had PT this morning. Our typical therapy model is to combine pt and speech together. I was leery about doing the therapies together but it has worked great and Hailey thrives with it. Last week, her pt was on vacation and today her speech therapist was out of town so we did a full hour of physical therapy today. Hailey did good...I'm very proud of her. I figured she would give up about halfway through. She did great until about the last 5 minutes.
There was a student with Abby (her therapist) this week. She asked if Hailey was about 9 months old...nope...not close. Abby was great all through therapy, pointing out Hailey's strengths and I'm happy to say there were quite a few. Hailey was cooperating. Therapy was going good until...we started talking forward.... Her therapist said she doesn't look for Hailey to walk before two and only anticipates a couple steps by then. She then followed with saying she would like to get Hailey fitted for braces at her next appointment in two weeks and she would have them in 4 weeks.
We exchanged good-byes and said we would see one another at the Buddy Walk. Hailey and I headed to the car...I buckled her in...loaded in the stroller...climbed in the front seat. It was there that I broke down. I sobbed. I'm not sure what triggered it. In my mind, I've not been anticipating Hailey walking before two. That is the average age for children with Down syndrome. I anticipated braces...we talked about them now for a couple of months now. So why the tears? I really don't know. I was hoping that Hailey would beat the average age. I was hoping that her pronation (the rolling inward of her ankles) would get better and she wouldn't need braces. I'm not in the mood to make the long string of phone calls to the insurance company and providers to make sure that insurance covers even part of them. I am bummed that Hailey has something more for people to stare at her. I am sad that the girl is fights harder for everything she does has to deal with more. I cried for about 10 minutes or so.
That was 6 hours ago....now I am better. Is it that big of a deal that she has to wear braces? No...it is better for her to get support. Hopefully, it makes walking easier for her. Hopefully they will make her stronger. Her not walking until 2....just have to deal with that one. I really wasn't anticipating it any earlier. This girl was fighting for her life a little over a year ago...in the grand scheme of things, this isn't major. It is just sometimes the little things sting and can set you off.
We will take the same approach with this that we have with everything since the day she was born. We take each obstacle and victory as they come and we do everything in our power to help Hailey (and all our children) become the best and strongest person she can be.
|Concentrating on her wooden puzzle|
|Taking care of her baby|
|I promise I didn't teach her to hold the baby by her hair!|
|Snacking on her favorite treat right now...veggie straws|
|Apparently she wants to take these "to go"|
|Oh how I love this girl!|