T
his is a post that was originally written during October 2011 challenge. Check out other posts or join the Summer Disability Blog Hop here.
I will be honest. There have been a few times through my life when I
have really questioned God...I've asked "why", "why me"...I've even been
mad at God. My mom passed away when I was 5 years old. I don't
remember it much but I do remember questioning things as I got older.
During different milestones in my life, I was mad that she was "taken
away" from me. My dad remarried and I was fortunate to have a fabulous
step-mom (I've called her Mom from day 1). I was upset that I couldn't
have questions like where did I get this habit, where did I get my
horrible singing voice from answered? I felt cheated.
Fast-forwarded 12 years, I was in a serious relationship for a year in
high school and the young man died in a single car accident. I
questioned God again...I was mad. I was older so I felt the pain more.
I had more anger. I felt cheated again.
That brings us to almost 20 years later. My sweet precious little girl
was born. She was taken to the NICU shortly after birth because she was
turning blue. It seemed like so much time had passed. The doctor and
my husband returned to "break the news" to me. My daughter has Down
syndrome and could possibly have a heart defect. That night was rough.
I did a lot of talking to God that night. I questioned him..."why me",
"why Hailey", "why not the woman in the room next to me", "how can you
do this to any child"? I cried. I was hurt, I was mad. Then I started
bargaining with God. "If you make sure Hailey doesn't have DS, I'll
volunteer more, I'll go to church more, I'll donate to the church more,
etc. At that moment, I would have done anything to change the outcome
of her genetic testing.
A few days later, after the shock wore off, I dropped an email to a
former priest from when I was growing up. He knows me and my family and
has for over 20 years. I pulled no punches in my email. I listed
every question and every angry thought I had. We emailed back and forth
over the next few weeks. I found peace in every response I received.
He made me realize it is okay to question God. I never stopped
believing in God. My faith remained strong.
Once I was able to spend more time with Hailey, hold her, feed her,
stare at her...I realized how grateful I was that God gave me this
beautiful child to care for, love and learn from. I truly believe that
God chose us for a reason. I have learned a lot about myself, as a
person and as a mom. I know I've already learned many valuable life
lessons since Hailey was born. I know that I have many more to learn
from her. I believe Hailey has a lot to teach others around her. I
feel privileged and honored that God entrusted us with Hailey (and also
our boys).
My faith in God has not waivered through this adventure. If anything,
it has gotten stronger. I do get annoyed every now and then and say
"Seriously, God...don't children with DS have enough?". "Did you have
to have soooo much in their little bodies affected by that extra
chromosome?"
My priest said shortly after Hailey was born, "Individuals with Down
syndrome seem to view the world the God intended it to be seen." I
think this is true. I also believe, having a person with Down syndrome
in your life, helps you to view the world in a different light. I
believe my daughter is going to WOW everyone...she is going to do great
things.
Look how little 6 month Hailey looks! She still makes funny faces though :-)
